Showing posts with label Autism. Show all posts
Showing posts with label Autism. Show all posts

Thursday, April 8, 2021

Autistic Child – Aditya Prabhakar



Every year, April is observed as Autism Awareness month. It is during this month that all the important monuments in the city are lighted up as in Blue Campaign. 

But painting the city in blue is not just what is needed, public should be educated on the intense challenges of the diagnosis and the tough aspect of living with disability. It should not be just committed to creating awareness, there should also be critical help given to the autistic persons in the form of social programs, education safety and employment opportunities. 

Many people do not know anything about autism. 

We discovered it after 3 1/2 years because till then he did not speak.  Then one of our Doctor friend who is a paediatrician guided us to go to UMEED and NIMH for evaluation followed by the therapy and our journey with Autistic child started. Says Vaishali Prabhakar, mother of 14 years old Aditya Prabhakar. “We were shocked and shattered to know that we have a special child and he has to go to the special school.  Because till then we were not aware about Autism. “



As a child, Aditya Prabhakar did not have eye contact, his speech was limited and he had no social interaction with other children. He was reserved and in his own world. 

Aditya was admitted in Swami Brahmanand School at Navi Mumbai, Belapur, at the age of 6years. Over the nine years in school he has shown marked progress.

His Mom, Vaishali  Prabhakar, is very grateful with the improvement shown by him at school  “We consider ourself lucky to admit our child in SBP.  Thanks to the support of the management, teaching staff and support staff.  They really made him independent, his academic potential was identified and improved upon.  His talent of singing, skating, swimming, table tennis and cricket was motivated encouraged and brought to the competitive level by the entire staff of SBP.  And this is all possible because of the support and guidance of our founder trustee Ms Shirish Poojari ma’am” 

Aditya is very sensitive, understands the pain of others. He is a very good audio leaner, his memory is good, he reads and writes, he is an excellent singer he learns the lyrics through audio, understands the background music and sings perfect karaoke songs without reading the lyrics on the screen.  He is good in numbers.

Level of awareness of Autism in India is very low that's why society doesn't accept them easily and look at them as an ALIEN. Says Vaishali, “Society should accept them the way they are and support them and help them to lead a normal life. Wherever we find such children's we tell them our experience and guide them. They should be vigilant about any abnormal changes in the behaviour pattern from day one. she continues

Aditya did not go to any other school before joining SBP. He joined school in 2012. He has learnt to perform his day to day activities. He has started talking and mingling with people.  He has won many awards and certificates over the years that include singing, sports, drama, yoga, cooking competition, Aditya had  also participated in a ‘Quizabled Knowledge’ for all in which he won cash prize and a gift


During the pandemic, the online sessions were regular. Due to the perseverance dedication of the management and teacher's he started liking online sessions in academic, sports, art and craft, singing.


Autistic children's leading a normal life totally depends on the support and acceptance by the society. “ says Vaishali Prabhakar



Friday, April 2, 2021

Autistic Child - Khushi Malve

 April 2nd is the day observed all over the world as ‘World Awareness Day’

It is day to make people understand and accept people with autism. It is the day to spread kindness and autism awareness.



Autism is a neurodevelopment disorder characterised by deficits in social and language communication, as well as repetitive behaviours and restricted interests. Children and adults with autism spectrum disorder have a wide range of abilities. Some people cannot speak at all and many have delayed or limited verbal communication. Some are greatly impaired in their cognitive thinking while others are extremely gifted.  Source:



 

Khushi Malve is an autistic student at Swami Brahmanand Pratisthan, Centre for PWID. She has shown marked progress since she joined the school, (eleven years now). Sports teachers at school have enhanced and recognised her skill in swimming and skating. 

They supported us in every possible way they could. She participated in swimming competition and made the school proud of their efforts.” Says her mother Geeta Malve 

 Khushi has won several medals and certificates for swimming. She won gold in Thane Samaj Kalyan Swimming competition,  won bronze in  National Swimming competition held in Pune.

Geeta Malve is the mother of 17 years old Khushi. 

Khushi was diagnosed with autism and MR at the age of 9months. It was very difficult for her to accept the truth as she was hearing the word ‘autism’ the first time. 

When doctor explained what symptoms are and how we could cope up with, we said our child can't be autistic”Says Geeta Malve, 


She felt that doctor had not diagnosed it properly. But as an autistic child, she had 
clear symptoms. It was observed that  Khushi had no eye contact, no reaction to sound, she was totally in isolation,  had no feeling of pain, no toilet control,  a delay in development milestone was observed, there was no motor coordination. For many months, Geeta couldn’t cope with this situation and went into depression.  

Gradually, day by day , year by year, she accepted the truth and heard many stories of success. She realised that the main motto is to make her child independent in daily life skills and understood that many are leading dignified life. She advises other parents to not underestimate the power of their kids  Consistency and encouragement is the key to success.  Patience is very important. She feels. 

Initially it was very difficult to make the people to understand,” she says, “ Nobody cooperates. Wherever I would take Khushi along with me, some people showed sympathy, others would  take away their kids, I just wanted to tell everybody that these kids also have the right to education,  right to live independently.  You must see their abilities, focus on what they can, not they cannot.  Give them opportunities.

Geeta is really proud of her daughter's abilities and proudly shares the certificates and medals collected by Khushi.



Khushi has always loved music since childhood. Even though she is sitting socially isolated as soon as she hears some particular music she brightens up  

Pandemic has been very stressful for parents of special children. With no activity to do at home, many children had behavior problems, but online education was started immediately and the good interaction between the staff members and the parents have shown lot of progress in children. 

Initially, during pandemic Khushi was asking many questions such as why schools are closed, and why must she wear mask. School shutdown affected a lot, she is in meltdown since 6 months. Lots of behaviours changes have been observed.  Hoping for  the best.” Says Geeta.

Geeta advises the parents to attend empowerment program,  


Give emotional support to the families sailing in same boat, go for early intervention, meet development paediatric for more clarification. Now-a-days lot of awareness  is there in young parents,  you can join support from support group.”

 You can join Forum for Autism. This is is a parent support group which caters to the needs of families touched by Autism Spectrum Disorder. The primary aim of setting up FFA was to create awareness


Saturday, April 9, 2016

Autism Awareness Month

Autism Awareness Day falls on 2nd April. This is the day when people from all walks of life come together to spread the awareness about limitations of special children, the problems faced by their parents, teachers and their care takers and how they can overcome it to help their child to lead a normal life.

Social media plays a big role in spreading awareness, its by sharing, we can find light.

This year too, April being the 'National Poetry Writing Month' (#NaPoWriMo), a private poets' group on Facebook called 'The Significant League' encouraged the poets to submit the poems on Autism under the prompt 'Blue and Gold'

There was a huge response, such that Dr Koshi AV and Nalinili Srivastava, compiled

A Poetic Journey: An Insight into the world of Autism From the Poet’s Point of View.


Here is my poem that also appears in this anthology

A Graceful Dance

Pushpa Moorjani
There is breathless
Hush in the close
I see you move
Unaware of
Sound and fury of
My pride
Effortlessly
Like a peacock
Spreading its wings
You dance to the rhythm
Nobody guessed
your struggle of
Stiff bones
And unstable mind
It was not easy
Many times
I almost died
To see you fall
After few graceful steps
On the floor
Unable to arise
Remember I said
“You cannot do
Leave it,
This art is not for you”
You blinked, confused when
I packed your anklets
Kept them aside
I blamed myself
For dreaming on a star
Guilt stung me like a thorn
I could not mould you
Into perfection
Of a happy child
But today,
Wide-eyed I watched
Through my night-smudged vision
You moved
Twisted and twirled
To a rhythm of your soul
Pulsing my heart
With melody
that cut like a knife
I could only hear
Audience around me
Applaud many times.
Tears blind me I see you shine
© Pushpa Moorjani. All rights reserved.
To read the poems by other poets you can visit their site at 'DIFFERENT TRUTHS"

Sunday, September 19, 2010

Autism’s First Child - Magazine - The Atlantic

As new cases of autism have exploded in recent years—some form of the condition affects about one in 110 children today—efforts have multiplied to understand and accommodate the condition in childhood. But children with autism will become adults with autism, some 500,000 of them in this decade alone. What then? Meet Donald Gray Triplett, 77, of Forest, Mississippi. He was the first person ever diagnosed with autism. And his long, happy, surprising life may hold some answers.
"How we respond to those needs will be shaped in great measure by how we choose to view adults with autism. We can dissociate from them, regarding them as tragically broken persons, and hope we are humane enough to shoulder the burden of meeting their basic needs. This is the view that sees the disabled in general as wards of the community, morally and perhaps legally, and that, in the relatively recent past, often “solved” the “problem” of these disabled adults by warehousing them for life—literally in wards.
Alternatively, we can dispense with the layers of sorrow, and interpret autism as but one more wrinkle in the fabric of humanity. Practically speaking, this does not mean pretending that adults with autism do not need help. But it does mean replacing pity toward them with ambition for them. The key to this view is a recognition that “they” are part of “us,” so that those who don’t have autism are actively rooting for those who do."

Read more at

Autism’s First Child - Magazine - The Atlantic

Thursday, August 27, 2009

Using Behavioral Approaches in Autism (And on Anyone)

by Shannon Des Roches Rosa (Guest Post, Thank you- Shannon)


Behavioral methods are usually associated with autism and early intervention, or orca training.

But guess what? You can use them to change the behavior of almost anyone: your children, your partner, your co-workers, even icky blog or Twitter trolls.

I am a huge fan of behavioral methods because they have helped my son gain so many skills, but I also confess that I use the methods to mold behaviors whenever I can.

Let me tell you how you can play puppeteer, too.

All you have to do is ignore undesired behavior, and instead seek out, role model, and reinforce desired behavior. If your subject doesn't respond, then analyze their motivations, and appeal to those motivations instead using reinforcers (okay, bribes) if necessary, which you can taper off once the behavior becomes routine.

That's pretty much it. I know.

Behavioral methods are straightforward, but they're not instinctive unless you're the kind of naturally empathetic and kind person I tend to avoid because you make me feel like a jerk.

And implementing behavioral approaches systematically and consistently, especially in parenting, takes more effort than asking children to talk about what they were feeling when they hit their brother over the head with a lunchbox (though understanding that motivation is important, too).

It takes a lot more analysis and upfront effort to be proactively positive instead of impulsively negative, but the results are generally worth it because you're not reacting and reprimanding, you're planning and conditioning -- and conditioning sticks.

Behavioral methods aren't foolproof, but they usually work. Here are some examples:

• Instead of yelling at a kid who picks her nose, hand her a tissue, and tell her how proud you are when she blows her nose instead of excavating. Actively watch for opportunities to catch her doing the right thing, and praise her with gusto when it happens. If this approach doesn't work, up the ante with a sticker or other reward chart. If you still can't find any motivation strong enough to stop the nose-picking, then you need to decide if it's a critical battle, or if you should change your focus to "I'm proud of you when you don't pick your nose in public," and start reinforcing that behavior instead.

• Instead of chastising a co-worker who takes the last cup of coffee and leaves the carafe empty, ask them if they wouldn't mind refilling it, and be emphatic but not patronizing in thanking them when they do so. Repeat repeat repeat. (You might want to wait until after they've had their first sip of coffee.)

Behavioral methods form the cornerstone of ABA therapy, which is one of the most commonly used approaches to help children with autism and other special needs learn. it is a 1:1 -- one child, one therapist instructor -- intensive, data- and evidence- driven educational program for addressing a child's learning deficits. Whether it takes place at home, at school, or across both places, all the learning is tracked, and the resulting data scored and analyzed to see what kind of progress the child is making.

Many autistic children have difficulty learning from their environment or in traditional educational settings, because there are so many assumptions involved in each lesson.

How can a child learn to write the letter A if they don't understand how to hold a crayon, that you need to hold the paper with the other hand, or even that you're supposed to remain seated? These kids need their learning broken down into small steps, and bolstered by repetition. This is what ABA therapy does.

It is not the only way to help our kids with autism and other special needs learn, and it doesn't don't work for all kids with autism because there is no one type of kid with autism, just as there is no one type of gifted child or one type of Deaf child.

But ABA is worth trying, to see if your child responds. ABA therapy methods taught my son Leo to dress himself, play with other kids, ask for help, and occupy himself independently. He simply did not respond to other ways of learning when he was little.

Some critics protest that ABA therapy is too rigid, too intense, and uses aversives or negative consequences to shape behavior. While these practices were used in the early days of researchers like Ivar Lovaas, an ideal modern ABA program is customized for each child's skills sets and learning needs, and is flexible not only in what it teaches but in where the teaching takes place.

There should be no forty hours per week of sitting at a table doing boring drills. There should be no punishments, only praise and reinforcements. ABA therapy, like most credible learning systems, continues to evolve through evidence regarding best practices.

ABA therapy is also frequently downplayed by a media that prefers to sensationalize autism "cures" achieved through dietary supplements or questionable medical protocols or Martian rocks, but I guarantee you: most "cured" or "recovered" children, including Jenny McCarthy's, Karyn Seroussi's, and Age of Autism's had ABA therapy as well, and likely made much of their progress in that environment.

Many of Rethink Autism's learning tips are simple but not necessarily something I'd come up with on my own, an example being color-outlining the inside edges of separate color areas to encourage children to use more than one color per picture

Using a one-inch-thick boundary around the coloring area, and then gradually increasing the size and complexity of the white space while reducing the thickness of the outline. Coloring inside the lines is an ongoing challenge for Leo, but the Rethink Autism approach seems to be helping so far:

We are currently in a situation that is testing our and Leo's long-time ABA program supervisor Emma's behavioral chops: Leo has decided that he would prefer not to have a little sister. My son may have many challenges, but his memory is tremendous, and he remembers his years as Mommy's baby quite clearly. He has tolerated his sister for almost five years, and now feels it's time for the usurper to go. He has spent the last few months trying to hit, pushing, and terrorize her non-stop.

My husband and I have been trying to ignore Leo's behavior (when safe to do so), or keep the two of them separated and supervised. But Supervisor Emma pointed out that this is not a long-term approach; we are not addressing Leo's motivation, which is to make his sister miserable enough to leave. So we need to take his motivation away. We need to create as many safe positive interactions between Leo and his sister as possible, so that Leo starts to like his little sister, sees that there many benefits to having her around, and stops trying to remove her from the picture.
Cross your fingers for us; if Emma's approach works, it'll be one more victory for behavioral techniques.

Source: http://www.blogher.com/using-behavioral-approaches-autism-and-anyone

Thursday, July 30, 2009

Case study of an autistic child



Vinesh lives in his own world, playing with his fingers and shaking involuntarily, sometimes throwing temper tantrums and other times destroying what ever comes in his hand. I see him pull out cane-threads from the mat under him, joining it to make a long string and then stretching and pulling and rolling it over and over. His teacher asks him to stop fidgeting and he folds the string and stuffs it into his pocket, but only momentarily and then, he is again, unrolling the string and playing with it over and over again. He shows no interest in the class activities and will respond only when his instructor gives him a personal attention. His teacher says that he is very cooperative only when given 'one-to-one' attention and he is quite independent in his self care activities. He can paint, draw and perform pre-vocational skills. He is able to follow instructions and is able to ape the actions if given individual help, but for most part of the day, he is hyperactive and lives in a world of his own.

Vinesh is a case of an autistic child.

Autism is a brain development disorder characterized by impaired social interaction and communication, and by restricted and repetitive behavior.

Autism is a complex lifelong developmental disorder, and has no cure, medical or therapeutic. However, through early intervention, many children have been able to lead productive and meaningful lives with support from their family, friends and professionals

Research indicates that giving early intervention in the form of specific and appropriate training methods that are tailored to your child's needs and learning style is the one way to help your child reach his/her maximum potential. Prior to this, it is important that a special educator take a detailed assessment of your child's strengths and difficulties to develop an individual education plan for your child. There are a number of intervention styles/methods, and you would want to choose that would benefit your child most.

Autism primarily affects the areas of communication, social skills, and thought and behaviour.


About a third to a half of individuals with autism do not develop enough natural speech to meet their daily communication needs. Differences in communication may be present from the first year of life, and may include delayed onset of babbling, unusual gestures, diminished responsiveness, and vocal patterns that are not synchronized with the caregiver. for example, they may look at a pointing hand instead of the pointed-at object and they consistently fail to point at objects in order to comment on or share an experience. Autistic children may have difficulty with imaginative play and with developing symbols into language.

Autistic individuals display many forms of repetitive or restricted behavior, such as:

Stereotypy is repetitive movement, such as hand flapping, making sounds, head rolling, or body rocking.

Compulsive behavior is intended and appears to follow rules, such as arranging objects in a certain way.

Sameness is resistance to change; for example, insisting that the furniture not be moved or refusing to be interrupted.

Ritualistic behavior involves the performance of daily activities the same way each time, such as an unvarying menu or dressing ritual. This is closely associated with sameness and an independent validation has suggested combining the two factors.

Restricted behavior is limited in focus, interest, or activity, such as preoccupation with a single television program or toy.

Self-injury includes movements that injure or can injure the person, such as eye poking, skin picking, hand biting, and head banging.

For many children, autism symptoms improve with treatment and with age. Some children with autism grow up to lead normal or near-normal lives. Children, whose language skills regress early in life, usually before the age of 3, appear to be at risk of developing epilepsy or seizure-like brain activity. During adolescence, some children with autism may become depressed or experience behavioral problems. Parents of these children should be ready to adjust treatment for their child as needed.

For further support and help in managing autistic child, read the answer as many questions about autism, dealing with behaviors, and other issues raised by families in India HERE
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